The TIL Trial from a patient's perspective.
Clinical Trial Resources in this post.
Jan 2017: Follow-up #10 and Interview with Joan Lunden and Dr. Steven Rosenberg
Aug 2016: Follow-up #8
July 2016: Cell therapy explained. One tumor's secret escape plan. here
May 2016: Follow-up #7.
Apr. 2016: She is N.E.D. for the very first time.
Mar. 2016: Follow-up #6. 46% shrinkage, BUT new growth.
Jan. 2016: Follow-up #5. PARTIAL RESPONSE confirmed. 46% shrinkage. Includes a CT image of a dead tumor.
Nov. 23/24, 2015: Follow-up #4 at NIH. 30% shrinkage compared to baseline. Includes CT image of a tumor as it goes from alive to dead, dead, all the way dead.
Oct. 19/20, 2015: Follow-up #3 at NIH. Tumors shrunk 27% compared to baseline. This post also contains links to two of Dr. Rosenberg's presentations on TIL therapy.
Sept. 14/15, 2015: Follow-up #2 at NIH. Tumors show 25% shrinkage by RECIST criteria.
Sept. 3, 2015: Two years since diagnosis. CLINICAL TRIAL RESOURCES
Aug. 20, 2015: Chemo port is removed.
Aug. 10/11, 2015: First follow-up at NIH. Tumors shrunk by 18%
Jun. 22: Apheresis. Collecting white blood cells to facilitate the TIL treatment.
Jun. 21 to Jul. 14, 2015: Inpatient at NIH for TIL trial participation. begin here
June 21: Renogram to test kidney function.
May: Thoughts on leaving my kids to be inpatient. Holding Pattern
Apr. 1, 2015: Lung wedge surgery on left lung to harvest tumor(s) for the TIL trial. 2-day hospital stay (preceded by apheresis and a bunch of scans).
Mar. 19, 2015: CT and meet attending at NIH. Attending recommends staying off chemo in the interim between surgery and TIL treatment.
Feb. 23, 2015: NIH requests an in-person screening visit.
Feb 2015: Don't Give Up! Try 3
Feb 2015: Try Again, and Xeloda is $$$ Try 2.
Jan. 2015 First Rejection: The Size of a Mustard Seed.
Dec. 19, 2014: My 49th birthday. I called the National Institutes of Health in Bethesda, MD to find out about the TIL trial.
Dec. 12, 2014: Lung wedge surgery to biopsy a lung nodule. Colon cancer metastasized to lungs confirmed. Now stage IV. Terminal diagnosis.
Winter 2014: Beware the Flying Wildebeest (also: Treatment #5 of FOLFOX)
Nov. 12, 2014: PET #3. Hypermetabolic activity seen in 5 of 8 pulmonary nodules. uh-oh.
Oct. 28, 2014: Needle Biopsy performed on left lung. No useful information. Spleen biopsied by accident (ow! ow! ow!) Needle Biopsy Part 2
Sep. 22, 2014: Reading the CT for ourselves. Our Rosetta Stone (path. report).
June - July 2014: Six weeks radiation to suture line on bladder.
Apr. 2, 2014: PET scan #2 No uptake of FDG
More Reasons to Despise Chemo
Oct. 2013: A Treatment (chemo #3) In Which I have a conversation with my liver.
Neupogen is so very painful.
Post-Surgical Visit. Sleen doesn't handle stitch-removal well.
Oct. 13, 2013: Funny Story about an Iron Infusion
Sep. 30, 2013: First FOLFOX treatment. Oxaliplatin is weird.
Sep. 30, 2013 to Mar. 3, 2014: FOLFOX (12 treatments spanning 24 weeks)
Sep. 28, 2013: MRI #1
Sep. 26, 2013: Sleen is very, very wobbly.
Sep. 25, 2013: Surgery to place a medi-port. PET scan #1
Sep. 5, 2013: Surgery to remove tumor, 21 lymph nodes (17 cancerous), and an artery. Primary tumor infiltrated urinary bladder. 20% of bladder removed. Five-day hospital stay. Stage IIIC colon cancer.
Sep. 3, 2013: The Riot Starts: Colonoscopy halted due to discovery of a colonic tumor.